Anusha meets the doctors facing scrutiny for treating Ehlers-Danlos syndrome. Meanwhile, Rachel takes a leap of faith, heading overseas to meet a surgeon who could save her life.

Read about a pledge made by Australian vascular surgeon Gert Frahm-Jensen to support new research into EDS: Australian surgeon pledges Kiwi patients' fees towards new vascular compressions research

A special thanks to the young women and their families for sharing their stories for this series. And thank you to the doctors, surgeons and specialists in New Zealand and overseas for sharing their medical knowledge and expertise.

If any of these stories affect you – you can find more information about EDS, at ehlers-danlos.org.nz - or you can look up EDS NEW ZEALAND on Facebook and Instagram.

Go to this episode on rnz.co.nz for more details