Episode Description
This week, XLH Australia President Sandy Bevc and XLH Australia Vice President Naomi Ford speak with their mothers about their experiences parenting a child with a rare condition.
Topics discussed:
- The journey to diagnosis
- Parenting a child with a rare disease
- Navigating healthcare and advocacy
Links mentioned in this episode: www.xlhaustralia.com
This podcast is hosted by ZenCast.fm