Vitelliform Macular Dystrophy (Best Disease) with Fiona - Australia & New Zealand

April 7
38 mins

Episode Description

In this first episode of Season 3, James Dunn returns as our new host, bringing thoughtful and engaging conversations to the forefront. He is joined by Fiona, an organisational design and HR leader with over 18 years’ experience, who shares her experience of living with vitelliform macular dystrophy (VMD), also known as Best disease, and how it has shaped her perspective on identity, accessibility, and inclusion.

  • Growing up with a childhood diagnosis and navigating the evolving impact of progressive vision loss
  • What progressive vision loss can look like in real life, why corrective lenses often cannot “fix” low vision, and the quiet internal question so many people carry: am I disabled enough to ask for help?
  • Why experimenting with free technology can be a powerful first step towards inclusion. Practical workplace accessibility tools, including screen readers, magnifiers, and read-aloud features
  • Creating more inclusive workplaces through awareness, flexibility, and thoughtful design

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