What Good Care Looks Like for Children w/Sickle Cell: First Steps and Medical Home

September 8
18 mins

Episode Description

What does good care actually look like for kids with sickle cell disease?


In this episode of our What Good Care Looks Like for Kids with Sickle Cell series, pediatric hematologist Dr. Jacob breaks it down. She covers what to do the moment you get the diagnosis, building your child's medical home, and putting together the full care team, from specialists to social workers to school support.


Dr. Jacob is the Director of the Pediatric Sickle Cell Program at Riley Pediatric Cancer and Blood Disorders and Co-Director of the Lifespan Sickle Cell Program at Indiana University.


This episode is part of Sickle Cell 101's Care and Treatment 101 Educational Initiative, a community resource dedicated to making care information accessible and actionable for the sickle cell community.


Thank you to our Care and Treatment 101 sponsors: Vertex, Chiesi, Pfizer, and Medunik.

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