A Mother’s Story of Navigating Sensory Sensitivities, ARFID and Family Life with Jo Read

February 9
36 mins

Episode Description

In this episode of Full of Beans, Han is joined by Jo Read, a mum to two daughters, ARFID advocate and 1/3 of 3 Mums 1 Mission ARFID. Jo's youngest daughter, Ethel, is diagnosed with ARFID and is awaiting an autism assessment. Since supporting Ethel through her sensory-based eating difficulties, Jo has poured her energy into raising awareness, because when you’re living it, ARFID can feel unbelievably isolating.

If you’re a parent or carer navigating food fears, sensory sensitivities, “helpful” comments that aren’t helpful, and the constant planning that comes with ARFID, this one is for you. You’re not doing it wrong. You’re responding to a very real, very complex need.

Key Takeaways:

  • The reality of ARFID as a genuine fear that can override hunger
  • Sensory sensitivities (texture, smell, predictability) are at the core of ARFID
  • Why consistency and familiarity make certain foods feel safer
  • The limits of BMI as a marker of health in children with arfid
  • How sensory overload at mealtimes can increase food avoidance
  • The impact of ARFID on family life, routines, siblings and social plans
  • Why “just stop feeding them” advice doesn’t work for ARFID
  • The value of community, advocacy and finding people who understand
  • How progress in ARID can look small but still be meaningful

Timestamps:

  • 00:00 Jo’s story and Ethel’s ARFID diagnosis
  • 02:20 Early Signs of ARFID
  • 05:30 BMI and Nutrition
  • 10:50 Safe foods, Predictability and Super Senses
  • 14:10 The Sensory Overload of Eating
  • 17:00 Family Impact: Days Out, Siblilngs, Friends
  • 20:20 Social Judgement and Support
  • 29:00 Looking Ahead and Slow Progress

Resources & Links

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⚠️ Trigger Warning: Mentions of eating disorders, ARFID. Please take care when listening.

If you enjoyed this episode, don’t forget to subscribe, rate, and share the podcast to help us spread awareness.

Sending positive beans your way, Han 💛

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