Ryu and the Right to Try

March 23
20 mins

Episode Description

Has the FDA thwarted Donald Trump on his Right to Try initiative in 2018? Angelina Olivera tells me about her son Ryu, who suffers from a rare disease, Duchenne Muscular Dystrophy. Ryu is running out of time for an effective medical treatment, but the FDA is blocking access to one drug that shows great promise. Angelina talks to us about fighting the bureaucracy at the FDA, and the need to have promises kept now rather than somewhere down the road.

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