Living in Between Flares | Ep. 124

June 14
37 mins

Episode Description

Living with Juvenile Dermatomyositis (JDM) isn’t just physical. It’s emotional, unpredictable, and often invisible.In this episode of Take a Pain Check, we talk with Marissa Douglas, a PhD student at Georgia Institute of Technology, who has been navigating JDM since childhood.Marissa shares: • What early symptoms were missed and how she finally got diagnosed • How sun exposure, chlorine, and stress trigger flares • The mental weight of long-term medications • What infusion life is really like • Making major life transitions while managing disease • Learning how to advocate for yourself when you’re not taken seriously • Rebuilding identity, confidence, and trust in your bodyThis episode is about navigating life when your body doesn’t always cooperate. If you’ve ever felt dismissed, overwhelmed, or like you’re “starting over” during a flare this conversation is for you.https://www.takeapaincheck.com/https://www.instagram.com/takeapaincheck_/ https://www.tiktok.com/@takeapaincheckhttps://ca.linkedin.com/company/take-a-pain-checkhttps://www.youtube.com/@takeapaincheckhttps://www.facebook.com/TakeaPainCheckhttps://www.x.com/takeapaincheckInstagram: marissy.kins123 LinkedIn: https://www.linkedin.com/in/marissa-d-226164269?trk=contact-infoDonate to Take a Pain Check Today: ⁠https://www.gofundme.com/f/takeapaincheck

See all episodes