Episode Description
I was invited to speak on the theme "expansion" at the event @Storiesthatstir, on the 24th February 2025. I know the lovely organiser, Monica, and I was honoured when she invited me to talk about our story.
This is the story of how becoming a special needs parent didn’t just expand our world—it catapulted us into a multiverse. One filled with fear, medical trauma, endless questions... but above all, with love.
I share our journey through rare disease diagnosis, NICU stays, open-heart surgery, and the terrifying uncertainties that come with Kabuki Syndrome. But I also share what gives me strength: a superhero metaphor that unexpectedly became my lifeline.
💚 If this story resonates, please share this podcast. You never know who might need to hear it today.
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📌 Follow our journey on socials: @mykabukigirl
🎥 Watch the video version on YouTube: https://youtu.be/xtA1BfNg9Cs or
Read the blog post: https://www.mykabukigirl.com/post/the-lantern-against-all-fears
#MyKabukiGirl #SpecialNeedsMama #SpecialNeedsParenting #KabukiSyndromeAwareness #GreenLantern #RareButReal #DisabilityParenting #MedicalMum #HeartWarriorMama #LoveIsMySuperpower #RealParentingMoments #RareDiseaseAwareness #storiesthatstir
🎙️ ENJOYED THIS EPISODE?
If this episode resonated with you, please subscribe and leave a review on Apple Podcasts or Spotify — it helps other families find us when they need it most. 🙏 Share it with a fellow mum, carer, or anyone who might feel less alone after listening. 💚
🎧 LISTEN TO SPECIAL NEEDS DIARIES
▶️ Apple Podcasts: https://podcasts.apple.com/au/podcast/special-needs-diaries/id1782035233
▶️ Spotify: https://open.spotify.com/show/2zp384wlxzIZyYAEEEqZlh
⚠️ CONTENT WARNING
This episode may contain discussions of [medical challenges/grief/diagnosis/mental health]. Please listen with care if these topics are sensitive for you.
📍 CONNECT WITH MINIE
🌐 Website: https://www.mykabukigirl.com
▶️ YouTube: https://www.youtube.com/user/mykabukigirl
📘 Facebook: https://www.facebook.com/profile.php?id=100090362986609
📸 Instagram: https://www.instagram.com/mykabukigirl
🎵 TikTok: https://www.tiktok.com/@mykabukigirl
💼 LinkedIn: ...