Episode Description
šļø Life with a SWASH Brace: What Parents Should Know
When my daughter was prescribed a SWASH brace, I didnāt expect to cryābut I did. In this episode, Iām sharing our honest experience with this hip-stabilizing orthosis: the emotions, the pros and cons, and how weāre learning to cope day by day.
Youāll hear:
š What the SWASH brace is and why it's used
š My unfiltered reaction as a special needs mum
š The practical sideāhow we put it on, adapt it, and prevent wear and tear
š Emotional & mindset strategies to stay grounded
š A free downloadable tool I created to help you track your childās brace usage, side effects, and improvements
š Grab the spreadsheet here: https://www.mykabukigirl.com/hip-brace-tracker
This is not medical adviceājust a mum sharing her journey through Kabuki Syndrome and everything that comes with it. If your child is starting with a brace or youāre just feeling overwhelmed by one more thing, I see you. Iām with you. And I hope this episode brings you some clarity and comfort.
š Letās connect on Instagram: @MyKabukiGirl
šŗ You can also watch the full video on YouTube: https://www.youtube.com/watch?v=1EobfkRxaH4
Or you can read it on my blog š https://www.mykabukigirl.com/post/life-with-a-swash-brace-what-parents-should-know
#SWASHbrace #SpecialNeedsParenting #KabukiSyndrome #Orthotics #ParentingAChildWithDisabilities #HowWeSpecialNeeds
šļø ENJOYED THIS EPISODE?
If this episode resonated with you, please subscribe and leave a review on Apple Podcasts or Spotify ā it helps other families find us when they need it most. š Share it with a fellow mum, carer, or anyone who might feel less alone after listening. š
š§ LISTEN TO SPECIAL NEEDS DIARIES
ā¶ļø Apple Podcasts: https://podcasts.apple.com/au/podcast/special-needs-diaries/id1782035233
ā¶ļø Spotify: https://open.spotify.com/show/2zp384wlxzIZyYAEEEqZlh
ā ļø CONTENT WARNING
This episode may contain discussions of [medical challenges/grief/diagnosis/mental health]. Please listen with care if these topics are sensitive for you.
š CONNECT WITH MINIE
š Website: https://www.mykabukigirl.com
ā¶ļø YouTube: https://www.youtube.com/user/mykabukigirl
š Facebook: https://www.facebook.com/profile.php?id=100090362986609
šø Instagram: https://www.instagram.com/mykabukigirl
šµ TikTok: https://www.tiktok.com/@mykabukigirl
š¼ LinkedIn: ...