Life with a SWASH Brace | What Parents Should Know

Apr 18, 2025
19 mins

Episode Description

šŸŽ™ļø Life with a SWASH Brace: What Parents Should Know

When my daughter was prescribed a SWASH brace, I didn’t expect to cry—but I did. In this episode, I’m sharing our honest experience with this hip-stabilizing orthosis: the emotions, the pros and cons, and how we’re learning to cope day by day.

You’ll hear:
šŸ’š What the SWASH brace is and why it's used
šŸ’š My unfiltered reaction as a special needs mum
šŸ’š The practical side—how we put it on, adapt it, and prevent wear and tear
šŸ’š Emotional & mindset strategies to stay grounded
šŸ’š A free downloadable tool I created to help you track your child’s brace usage, side effects, and improvements

šŸŽ Grab the spreadsheet here: https://www.mykabukigirl.com/hip-brace-tracker

This is not medical advice—just a mum sharing her journey through Kabuki Syndrome and everything that comes with it. If your child is starting with a brace or you’re just feeling overwhelmed by one more thing, I see you. I’m with you. And I hope this episode brings you some clarity and comfort.

šŸ’Œ Let’s connect on Instagram: @MyKabukiGirl
šŸ“ŗ You can also watch the full video on YouTube: https://www.youtube.com/watch?v=1EobfkRxaH4

Or you can read it on my blog šŸ‘‰ https://www.mykabukigirl.com/post/life-with-a-swash-brace-what-parents-should-know

#SWASHbrace #SpecialNeedsParenting #KabukiSyndrome #Orthotics #ParentingAChildWithDisabilities #HowWeSpecialNeeds

Send me a feedback!

Support the show

šŸŽ™ļø ENJOYED THIS EPISODE? 

If this episode resonated with you, please subscribe and leave a review on Apple Podcasts or Spotify — it helps other families find us when they need it most. šŸ™ Share it with a fellow mum, carer, or anyone who might feel less alone after listening. šŸ’š 


šŸŽ§ LISTEN TO SPECIAL NEEDS DIARIES 

ā–¶ļø Apple Podcasts: https://podcasts.apple.com/au/podcast/special-needs-diaries/id1782035233

ā–¶ļø Spotify: https://open.spotify.com/show/2zp384wlxzIZyYAEEEqZlh

 

āš ļø CONTENT WARNING 

This episode may contain discussions of [medical challenges/grief/diagnosis/mental health]. Please listen with care if these topics are sensitive for you. 

 

šŸ“ CONNECT WITH MINIE 

🌐 Website: https://www.mykabukigirl.com

ā–¶ļø YouTube: https://www.youtube.com/user/mykabukigirl

šŸ“˜ Facebook: https://www.facebook.com/profile.php?id=100090362986609

šŸ“ø Instagram: https://www.instagram.com/mykabukigirl

šŸŽµ TikTok: https://www.tiktok.com/@mykabukigirl

šŸ’¼ LinkedIn: ...

See all episodes