Episode Description
Imagine falling asleep for two months straight — losing your memory, your personality, even your sense of time. That's life with Kleine-Levin Syndrome (KLS), one of the rarest sleep disorders in the world. In this episode of Narcolepsy Navigators, hosts Kerly and Sakhara sit down with Saphronia Young, a former elementary school teacher from Texas living with both KLS and Narcolepsy with Cataplexy.
Saphronia opens up about her decade-long fight for a diagnosis, the school district that sent her to an alcohol treatment center instead of supporting her, the family nickname "Lola" for the person she becomes during an episode, and her honest, unfiltered answer to the Red Button Question: would she push the button to erase her diagnosis if she could?
This is a conversation about resilience, faith, and what it costs to be misunderstood by the people who are supposed to help you.
About The Guest
Saphronia Young is a former elementary school teacher from Texas living with Kleine-Levin Syndrome (KLS) and Narcolepsy with Cataplexy. Diagnosed with KLS in 2016 after years of misdiagnosis, and with narcolepsy just three years ago, Saphronia now works as a virtual tutor from home, where she can manage her episodes on her own terms. She's a mom, a fighter, and an advocate for greater awareness of rare sleep disorders.
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***If you find these symptoms relatable, please seek medical advice.***