Episode Description
What are unseen MS symptoms really like? In this inspiring episode, Hjördís Ýrr Skúladóttir from Iceland shares her personal journey with multiple sclerosis, from diagnosis and burnout to becoming a patient advocate and former Chair of the Icelandic MS Society.
Together, we talk about invisible MS symptoms such as fatigue, bladder problems, and emotional exhaustion, while also exploring leadership, healthcare in Iceland, and the power of community support.
Hjördís explains how her background in education and policing shaped her resilience and communication skills, and why she believes openness and compassion are essential for living well with MS.
Topics discussed:
- Living with unseen MS symptoms
- MS fatigue and misconceptions
- Iceland's healthcare system
- The role of MS nurses
- Becoming a patient expert
- Leadership and advocacy
- Community support and empowerment
- Work-life balance with MS
- Hope for the future of MS care