A long-form conversation with Lauren Holder, host of the Help4HD podcast and a rare disease advocate, who lives with Huntington's disease. In this episode (part 1 of 3), Lauren talks about how her family learned about their risk for Huntington's when Lauren was 15, her experience seeking genetic counseling and testing for Huntington's when she was 20, and the huge gap that still exists in getting previvors the support that they need, especially mental healthcare. 

Find the show notes for this episode here. 

This episode is brought to you by The Tell Me Project, a story archive and a listening project where we host conversations with people about the meaning of genetic information in their lives. Follow Genetic Frontiers on your favorite podcast app, leave us a review, and connect with Genetic Frontiers on LinkedIn or Substack to join the converation.