Episode 13: When You Realize the Foundation Is Made of Sand (Living with Lynch Syndrome)

Nov 7, 2025
1h 36m

Episode Description

In this open and vulnerable conversation, host Susanna Smith talks with Tiffany Graham Charkosky, author of Living Proof: How Love Defied Genetic Legacy, about their shared experiences of living with genetic risks, in Tiffany's case, Lynch Syndrome and in Susanna's case, CADASIL. They chat about the unique psychological state of living for decades as a healthy person who is also at risk of a serious disease, their feelings of guilt, responsibility, and shame, and the spaciousness that can be found in contemplating your own death. 

This episode is brought to you by The Tell Me Project, a story archive and a listening project where we host conversations with people about the meaning of genetic information in their lives.

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