Ep 106. Being Rare and Black: A Rare Disease Day Exclusive

Mar 1, 2025
55 mins

Episode Description

In this episode of the Being Rare Podcast, Sarita sits down with James Griffin and Genesis Jones, patient advocates and authors. We're talking about navigating life with sickle cell, healthcare bias, stigma, and more!

The books mentioned in this episode can be found on Amazon. Direct links are below.

Breaking Silence: Living with Sickle Cell Anemia by James Griffin III https://a.co/d/3znpc3s

Rebirth: A Sickle Cell Warrior's Crossover (Warrior's Sickle Cell Poetry Collection) by Genesis Jones https://a.co/d/3lVQL7Z

Resilient: Reflections of a Sickle Cell Journey (Warrior's Sickle Cell Poetry Collection) by Genesis Jones https://a.co/d/73XsFla

See all episodes

Never lose your place, on any device

Create a free account to sync, back up, and get personal recommendations.